lissencephaly
I am sharing important news regarding Lissencephaly Awareness Day on Sept. 8. The City Council in Quincy is scheduled to sign a proclamation to honor this day during its Sept. 3 meeting. Additionally, the Memorial Bridge will be illuminated in purple on Sept. 1 to raise awareness for lissencephaly. Elijah’s Baby Bucket List is a…
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“Elijah’s Baby Bucket List” is a social media movement raising awareness about a rare brain malformation while helping 5-year-old Elijah Tarpein live life to the fullest. Elijah is quite the celebrity, and not just among his nine older siblings. He was born with lissencephaly, a rare terminal genetic condition that causes seizures and spastic quadriplegia…
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QUINCY — Elijah Tarpein is much like many kids his age. At 3 1/2 years old, he wants a puppy, likes peanut butter milkshakes and enjoys watching YouTube videos. “He lives a life full of joy,” said Amy Elijah also is much different than many kids his age. He was diagnosed at birth with lissencephaly,…
Read Full Article November 23, 2024
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